As representatives of ALAPA, Argentina Patient Alliance, we are pleased to inform you that during the days 21, 22 and 23 June we will hold the first congress of rare diseases in LATIN AMERICAN under the virtual mode.
In the framework of the Global pandemic, we find ourselves and the sectors that we represent in a situation of high vulnerability. For this reason, we consider it necessary to propose a Congress with multidisciplinary themes and including medical and research areas, as well as Government Organizations and Patient Organizations.
We believe that the success of the Congress will be based on achieving a workspace with an attractive scientific program, new therapies and generative debates on new health accessibility policies for the patients we represent.
We will have the participation of national and international speakers of academic renown, who will present successful experiences carried out abroad and policies that must be implemented to transform a current health problem into a path of opportunities and learning.
CARLINA M. PATERNOSTE
President of the Congress
Secretary of the Congress
FLORENCIA BRAGA MENÉNDEZ
General Director of ALAPA Projects
Lic. CAROLINA OLIVETO
General Director of ALAPA Programs
FLORENCIA BRAGA MENÉNDEZ General Director of ALAPA Projects
CAROLINA OLIVETO General Director of ALAPA Programs
ARIEL PELONI General Director of Communication. ALAPA
Sclerosalud (Scleroderma and Raynaud))
VERÓNICA ALONSO AMA (Mucopolysaccharidosis Association in Argentina)
VANINA SÁNCHEZ President of FAME (Families Spinal Muscular Atrophy)
MARISOL ETCHEPARE Argentine Group of Patients with Uveitis